Here you will find updates and new information of what I have found to be helpful in making your journey with MS a little bit easier.
June 13, 2016:
I participated in a research project called Algorithmic-Based Evaluation and Treatment Approach for Robotic Gait Training, conducted by Dr. James Chang of the University of Texas Health Science Center at Houston and his research team at TIRR Memorial Hermann Hospital. I participated in this study the beginning of the year involving an exoskeleton at TIRR Memorial Hermann. For those that are not familiar with TIRR, TIRR Memorial Hermann is a national leader in medical research and rehabilitation; and, is recognized as one of the nation’s “Best Hospitals” by U.S. News & World Report. TIRR is a teaching hospital for Baylor College of Medicine and The University of Texas Medical School at Houston.
My husband learned of a study that TIRR was conducting, and contacted TIRR to see if I could be a part of it. I spoke with Marcie, the physical therapist at TIRR, in October of last year, and made plans to visit their Research Center the beginning of the new year.
I met with Marcie in January, and was told the day of our first meeting that I qualified for the study. The study involved 15 hours with Ekso, their exoskeleton (click on “Ekso” to see a video of me with Ekso). Information about the study is as follows:
The University of Texas Health Science Center at Houston and TIRR Memorial Hermann [Study Title: Wearable lower extremity to promote walking in persons with multiple sclerosis].
“The purpose of this pilot study is to investigate whether using exoskeleton could promote recovery of walking in persons with MS. Overall, we expect these findings to support that exoskeleton will demonstrate greater efficacy to facilitate walking and can be applied extensively to improve quality of life in MS.”
My first day with Ekso was very intimidating and overwhelming. Ekso is basically strapped to my back and the back of my legs, and my feet sit on his. He had complete control of our first session, which terrified me. Marcie knew I was really stressed, and kept reminding me that Ekso and I needed to “learn to dance together,” which is the best way to describe how the therapy works. Once Ekso and I got in sync with one another, we took off! Towards the end of the study, Ekso and I would walk sometimes for an hour, at the fastest pace allowed.
Being part of TIRR’s study involving Ekso was one of the best decisions that I could have made. (I am so thankful that Ron introduced me to Marcie and the people at the TIRR Research Center. They are a great group of people, and what they are doing is really incredible.) Because of Ekso, I built up muscle in my legs and strengthened my back. I felt great!
Not only did Ekso strengthen me physically, he also allowed me to be a part of helping TIRR and their Research Center spread the word of all the good that they are doing. I was asked to be interviewed by a couple of TV stations, as well as magazines and newspapers, to answer questions and to show how Ekso worked. I am not a person who enjoys being the center of attention. I prefer to sit back and take everything in that is going on around me. I was a nervous wreck when Melissa Wilson with Channel 26 interviewed me. But, she was awesome and I think the interview went well. Soon afterwards, Channel 13 interviewed me a couple of times, as did newspapers and a magazine. Each time gets easier, and I look forward to seeing what God’s plans are for me next.
TIRR asked me to be part of another study, which I started a couple of weeks ago. The study involves Ekso, as well as another robot, if you will, named Rex. I’ll definitely let you know how that goes.
September 29, 2015:
In June of this year, I was introduced to essential oils. My wonderful cousin recommended that I look into them as she found them to be very helpful with her health issues.
After a lot of research, I found that the practice of using essential oils has been around for hundreds of years. In fact, the use of essential oils dates back to the ancient Egyptians. Additionally, there are a lot of biblical references to essential oils for spiritual and medicinal uses.
The power and science behind essential oils has stayed true to ancient practices by helping the body stimulate certain system receptors while calming others. Essential oils are wonderful in addressing health issues that many people suffer from (i.e., high blood pressure, allergies, diabetes and insomnia to name just a few), as well as helping with skin issues, helping one relax, and in using to clean one’s house or do laundry with them. Additionally, they provide fragrances to balance mood, lift spirits, dispel negative emotions, and create a romantic atmosphere.
Our world today has only begun the discovery of the power of God’s healing oils – something that the ancient world knew well. Their time was one without laboratories, manufacturing facilities, high technology and equipment, or chemicals. The earth and its healing gifts were the ancient world’s medicine. Modern medicine is certainly not without its miracles. Millions of lives have been saved in crisis and malfunctions of the body. But the way to live with strength and vitality without pain and disease lies in what God has created, not in what man has altered.
Essential oils are no longer the missing link in modern medicine. Millions of people are applauding their power, and millions more are being introduced and educated to their potential each year. As more health practitioners, doctors, scientists and users of all ages venture into the world of this ancient knowledge, the methods of medicine will take on new dimensions, and exciting discoveries will be made that will benefit us today and tomorrow.
The following are a few ways to apply the oils and how to use them:
Inhalation [having an aroma omitted in the air]:
- Diffuse undiluted oils in a cold-air diffuser 1/2 hour every 4-6 hours or as desired. Cold air diffusers are not designed to handle vegetable oils because they are thicker and may clog the diffuser mechanism.
- Put 2-3 drops of your chosen oil in the palm of one hand, rub palms together, cup hands over your nose and mouth, and inhale throughout the day as needed. You may even consider putting a dab of oil under your nose.
- Put 2-3 drops of oil on a cotton ball or tissue and put it in an air vent in your house, vehicle, hotel room, etc.
If diffusing while sleeping, set your timer for the desired length of time for automatic shut off.
Topical [placing the oil directly on your skin]:
You may apply single oils or blends neat or diluted, depending on the oil or oils being used. (“Neat” means applying the oil directly, and diluted refers to mixing the oil with an oil . . . I use coconut oil when diluting. “Blend” means to mix several oils together.)
It is important to do a skin test first by putting 1 drop of the desired essential oil on the inside of the upper arm. If any redness or irritation results, the skin should be thoroughly cleansed; then the oil may be reapplied. If skin irritation persists, try using a different oil or oil blend.
- Apply 1-3 drops diluted 50:50 on the rain reflex points on the forehead, temples, and mastoids just behind the ears.
- Apply direct pressure and massage 6-10 drops diluted 50:50 from the base of the skull, down the neck and down the spine.
- Place a few drops of oil on a loofah brush and rub along the spine vigorously. Always use a natural bristle brush, since the oils may dissolve plastic bristles.
Internally [ingested in your body]:
Ingestion of essential oils delivers concentrated and potent dietary support. Many essential oils are taken internally as dietary supplements. The benefits of internal consumption are improved immune system, healthier digestive system and healthier mouth and throat.
A few ways to use the oils internally are:
- add a drop of the oil to a tablespoon of honey and either eat plain or add to a smoothie;
- for immediate relief, place one drop under your tongue; or
- if your concerned about the flavor, carefully add 1-2 drops of the chosen oil, or oils, to an empty capsule and swallow.
Always drink more water when using essential oils because they can accelerate the detoxification process in the body. If you’re not drinking adequate fluids, the toxins could recirculate, causing nausea, headaches, etc.
Personally, I’ve found the following essential oils to be beneficial for person’s suffering from MS, and apply each oil topically (I’ve also included the symptom each oil directly addresses):
- Basil – Powerful antispasmodic, antiviral, antibacterial, anti-inflammatory, muscle relaxant
- Frankincense – Antitumoral, immunostimulant, antidepressant, muscle relaxing
- Geranium – Antispasmodic, antioxidant, antitumoral, anti-inflammatory, anticancer, hemostatic (stops bleeding), antibacterial, antifungal, improves blood flow, liver and pancreas stimulant, dilates bile ducts for liver detoxification, helps cleanse oily skin, revitalizes skin cells
- Helichrysum – Anticoagulant, anesthetic, antispasmodic, antiviral, liver protectant/detoxifier/stimulant, chelates chemicals and toxins, regenerates nerves
- Juniper – Antiseptic, digestive cleanser/stimulant, purifying, detoxifying, increases circulation through the kidneys and promotes excretion of toxins, promotes nerve regeneration
- Marjoram – Its muscle-soothing properties help relieve body and joint discomfort. May also help soothe the digestive tract and is a general relaxant. Antibacterial, antifungal, vasodilator, lowers blood pressure, promotes intestinal peristalsis, expectorant, mucolytic
- Peppermint – Anti-inflammatory, antitumoral, antiparasitic (worms), antibacterial, antiviral, antifungal, gallbladder/digestive stimulant, pain relieving, curbs appetite
- Rosemary – Liver protecting, anti-inflammatory, antitumoral, antifungal, antibacterial, anticancer, antidepressant, hypertension moderator (high blood pressure), enhances mental clarity/concentration
- Sacred Frankincense – Frankincense has been tested as an anticancer agent (Ni, et al., 2012; Suhail et al., 2011). Therapeutic-grade Frankincense oil contains boswellic acids, which are potent anti-inflammatory agents against rheumatoid arthritis and osteoporosis
- Thyme – Antiaging, antioxidant, anti-inflammatory, antispasmodic, highly antimicrobial, antifungal, antiviral, antiparasitic. A solution of thyme’s most active ingredient, thymol, is used in many over-the-counter products such as mouthwash and vapor rubs because of its purifying agents.
The following oils, or blends, are beneficial for MS, as well:
4 drops of Geranium
4 drops of Rosemary
2 drops of Helichrysum
2 drops of Juniper
Although I’m using and benefitting from the use of essential oils, it is important to mention that I am still seeing my neurologist every 3 months, as well as getting my monthly infusion of Tysabri. I will continue my therapy, continue using the essential oils daily and continue meeting with my neurologist to discuss what’s best for me.
As mentioned, I’ve been using the oils since June (so, for almost 4 months) and it’s true … the oils help tremendously!!! Not only have they helped with my balance; but, they have also helped with my stamina and muscle weakness.
Wishing you the very best,
May 11, 2015:
Importance of Sleep
The Effects of Skipping Sleep.
So, you’ve made your bone broth, kombucha, meat patties, and roasted vegetables for the week. You’ve prepared your kids’ lunchboxes and helped them with their homework. After they go to bed, you steal some yoga time, trying to quiet your mind in preparation for bed. But then you suddenly remember your daughter’s class is having a birthday party, and you forgot to make a paleo cupcake for her to eat. You sigh, stand up from downward dog, and head back into the kitchen to whip up some cupcakes, eating two yourself before heading to sleep after midnight. You have to get up in six hours to run errands before work, and as you lie there willing yourself to fall asleep, the task seems impossible. You soothe yourself by remembering that the grandparents are taking the kids for the weekend, so you can catch up on your sleep then.
Sound familiar? Maybe you don’t have kids, but you have a job that requires you to work long hours, or you’re in school yourself with an ever-growing list of homework. How many of us try to squeeze extra time out of the day, by staying up late or getting up early? We sacrifice sleep, because in American culture, we don’t value it. We consider it unproductive time, but we’re wrong.
When it comes to reversing autoimmune disease, sleep is as important to our health as diet, and it might be the key (or the obstacle) to remission. Research also shows that we can’t “catch up” on sleep over the weekend. It feels like we can, because we’re less tired after a couple of good nights’ sleep, but on a cellular level we haven’t recovered. There are many studies connecting poor sleep to inflammation, but let me highlight a recent one. Published in the scientific journal PLOS ONE in 2013, the study showed that short nights of sleep affect the expression of 117 different genes, turning on genes that increase inflammation and stimulating the immune system into a defensive mode. That sounds like a setup for autoimmunity, doesn’t it? They also found that two nights of recovery sleep weren’t enough time to reverse all these changes, leaving the body in a chronic state of inflammation and immune activation.
I know. You want to know how on earth you can find time for extra sleep. Don’t I know how busy you are? I won’t lie to you – it’s not easy. I personally found it harder to change my sleep habits than my diet. With autoimmune disease, though, we can’t turn a blind eye to the effect sleep has on our health. Simple math tells us that sleeping longer means fewer waking hours, and that means we have to do less, say no more often, and be as efficient as possible in our waking hours.
How To Sleep To Reduce Inflammation.
Get on a regular sleep schedule. This is the most important thing. You need a minimum of 8 hours sleep every night without exception, and 10 hours is even better. Set your alarm for the same time every day, and also start going to bed at the same time every night.
Start preparing for bed an hour before bedtime. It takes that long to wind down, gather what you need for the next day, and finish up what absolutely needs doing.
Limit your screen time, especially in the evening. Computers, phones and TV eat up more time than anything else. You’ll have more time for sleep, and you’ll also sleep better without the blue screen light exposure that stimulates wakefulness.
Get outside during the day. This activates healthy circadian rhythms, essentially letting your body know when it’s daytime, so you’ll naturally get sleepy at night.
Do something relaxing before you go to bed. Meditate, take a bath, turn down the lights and listen to soft music, or drink a cup of calming tea.
If joint pain keeps you awake at night, consider extra pillows. Hugging a pillow takes the pressure off your shoulders, and a pillow between your knees takes the pressure off your hips.
Sweet dreams, everyone!
The Wahls Protocol, Terry Wahls, M.D., pp. 3-4-307, 309
March 17, 2015:
The Functional Medicine Practitioner
In researching possible steps in healing one’s body from an autoimmune disease, I discovered Functional Medicine Practitioners. In The Wahls Protocol, Terry Wahls discusses the realm of functional medicine and specifically states:
… the realm of functional medicine: to discover and treat the root causes of broken biochemistry by looking at the physiological systems for everything from the cells to the organs to the entire organism, and addressing the causes of the problems at their root. This is why I have embraced this form of medicine. I believe it is the only sensible way to correct biochemical dysfunction so you can return to health, rather than simply easing symptoms with drug therapy. The Wahls Protocol, p. 49.
After reading about Functional Medicine Practitioners, I continued researching and found the following on The Institute for Functional Medicine’s website:
Functional Medicine Practitioner –
What is Functional Medicine?
If you live with a chronic condition, you know that our current system of medical care isn’t working very well. The current health care system is designed to treat urgent medical problems, also known as “acute” conditions. But chronic, lifestyle-related diseases can’t be treated successfully using that same approach.
What works is an individualized approach to patients — with an emphasis on the ways our environment and lifestyle choices interact with our genes.
Functional Medicine is an innovative approach to medical care. It uses the latest medical research to develop personalized care for each patient based on their unique environment, lifestyle and genes. The result is a dynamic, effective way to address chronic disease. And it really works. The Institute for Functional Medicine.
What to Expect from a Functional Medicine Practitioner — Working with a Functional Medicine Practitioner:
When you visit a Functional Medicine practitioner, you can expect to spend a lot more time with them than you would with a conventional provider. You can also expect to do a lot of talking, as a big part of Functional Medicine is exploring your detailed personal and family history, the circumstances around your first symptoms, and the experiences you may have had with other health care providers.
The Institute for Functional Medicine teaches practitioners how to uncover the underlying causes of your health problems through careful history taking, physical examination, and laboratory testing.
In addition to doing a lot of talking about your history, the doctor will ask about your mental well being, spiritual health and social factors. Considering these areas helps the Functional Medicine practitioner see your health in the context of you as a whole person, not just in terms of your physical symptoms.
The Functional Medicine provider may do a detailed examination of your body to see if there are any visible signs that provide clues to what is going on under the surface.
They may also suggest that you submit samples for laboratory testing; some of these tests are the same ones used by conventional clinicians, but others are specialized tests that can help determine the causes of your illness. This might include genetic testing, which can show if the genes you inherited from your parents may make you more susceptible to certain types of health problems.
Once the practitioner has all the results from your tests, they will ask for your help in designing a treatment plan. The good news is that most health issues can be successfully treated as long as the right causes are identified. Some people can be completely restored to optimum function, while others can see substantial improvement in their condition. You can also take steps to help prevent your disease from worsening.
The treatment plan you help design will usually include making some changes in your lifestyle: what you eat, your physical activity, how you deal with stress, your exposure to potentially toxic substances, and other factors. The point of these changes is that your genetic makeup, the genes that you inherited from your parents, are designed to work well in a specific environment. Sometimes, when genes are exposed to the wrong environment, they don’t work as they should, and this can lead to health problems. The good news is that, although individual genes may make you more susceptible to some diseases, your genes may be influenced by everything in your environment, as well as your experiences, attitudes, and beliefs. That means it is possible to change the way genes work in your body. So, changing your environment can make the genes work the way they were designed to, returning you to health.
In addition to lifestyle changes, Functional Medicine treatments may include combinations of drugs, botanical medicines, nutritional supplements, therapeutic diets, or detoxification programs. But you will always have a big role in choosing those treatments, because as a patient of a Functional Medicine provider, you become an active partner with them in the design of your own treatment plan. This allows you to really be in charge of improving your own health and changing the outcome of disease.
Click here to find a Functional Medicine practitioner near you.
Questions for Functional Medicine Practitioners:
Here are some questions that you may consider asking a practitioner who practices functional medicine:
1. How would you describe your practice as a functional medicine practitioner? Do you have information you could send me about your practice?
2. Do you have experience treating my condition?
3. What is the cost of an office visit? Do you take insurance or are you a cash practice?
4. What are the main therapies that you use? For instance, are your primary therapies dietary, herbal medicine, chiropractic adjustments, nutritional supplements, hormone replacement therapy, and/or other prescriptive medications?
5. Do you use laboratory tests (urine, stool, saliva, and/or blood) to help you with your diagnosis or do you rely on other assessment tools? If so, what other assessments do you use?
The Institute for Functional Medicine.
I hope you find the information provided herein helpful, and I encourage you to follow the steps your journey leads you to.
February 11, 2015:
Hello my friends! I hope all is well.
As promised, the following is an update on the meals ordered from the Wahls Paleo Meals.
I ordered one week of the meals (14 ready-to-eat-meals), which included lunch and dinner. Overall, the food was tasty and very filling. The box of food came with a list of the foods included; but, none of the packages were labeled. So, I had no idea what I was eating. I don’t know about you, but if something doesn’t look good or it just doesn’t look appetizing, I won’t touch it. Needless to say, there were a few things that I didn’t eat. As such, I only ordered the 14 meals because I felt like I was throwing money away on the food that I didn’t eat.
If you enjoy trying new things and have a receptive palate, I think this would work well for you. It is a little pricey, but the convenience is definitely worth it. And, having the peace of mind that everything you’re eating is what your body is needing to heal itself is priceless.
Wishing you the best!
September 2, 2014:
Wow! The past year has been absolutely crazy. It all started when I stopped taking the monthly infusion of Tysabri in July of last year. I had to wait 90-days before I could start taking the new therapy, Tecfidera, which I started taking in October of 2013. I wanted to try the Tecfidera for the convenience only. It’s a pill that you take twice a day, which is very convenient as I didn’t have to go to my doctor’s infusion suite once a month for the infusion of the Tysabri. It was the worst decision I could have made.
It was very convenient taking the pill twice a day at home; but, the side effects were AWFUL … the worst being stomach issues (the two most common side effects are flushing and stomach problems). It was so bad I lost between 10 and 15 pounds, which I had no room to lose. I got back on the Tysabri in March of this year, and am doing so much better.
However, even though I was back on the Tysabri, I was still having stomach issues. I had an EGD Upper Endoscopy done in hopes of getting answers as to what was causing the stomach problems. Unfortunately, it showed nothing.
In the meantime, I was still seeing Tracey … my chiropractor and nutritionalist. It was Tracey that discovered that I had a parasite that was causing the stomach problems. It wasn’t a parasite that was in my intestines, but it was in my liver. Gross, I know. She gave me supplements and the problem FINALLY stopped! I don’t know what I would do without her.
While all this was going on, I started physical therapy in January of this year. It was one of the best decisions that I’ve made. I went to physical therapy from January through April, and stopped in April to focus on our daughter and son’s graduation. Our daughter graduated from A&M in May, and our son graduated from high school in June. By not going to physical therapy 3 days a week, it allowed me an extra 6 hours a week to focus on their graduations. My physical therapist gave me a printout of exercises to do at home and in our pool. The printouts are extremely helpful, and I’m focused on doing the exercises every day. In addition to the exercises, I recently got a stationary bike, which I get on a few times a week. I highly recommend physical therapy and exercising to help with any mobility issues you might be having. The physical therapist that I saw was with TIRR Memorial Hermann. I highly recommend TIRR … they are very knowledgable in what they do and are the best physical therapists that I’ve been to.
Now that I no longer suffer from the stomach issues and have an exercise program that is very helpful, I’m now focusing on my diet. If you haven’t heard of Terry Wahls, MD or checked out her website, I encourage you to do so. Her story is very inspirational. She discusses how the Paleo diet changed the course of her MS symptoms, and she offers a link to order Wahls Paleo Meals. I placed an order this week, and will let you know what I think of it all.
I hope each of you are doing well!
August 19, 2013:
For over a couple of months now I’ve been seeing Dr. Hui Ouyang DC, LAC, OMD (“Dr. O”), an acupuncturist. I had always heard good things about acupuncture, and wanted to see if an acupuncturist would be able to help me in my journey. It had been recommended to me to find an acupuncturist who was not only licensed in Western medicine, but also in Eastern medicine. Dr. O is licensed in both.
When I was scheduled to go back to work the first time that I took disability in 2005, Ron and I went to Arkansas for a few days. It was during that time that I had an attack and my right hand went completely numb. It is still numb to this day. Since seeing Dr. O, though, the feeling in my right hand is coming back. I now have feeling on the top and bottom of my hand, and can actually feel things in my right hand. It really is incredible how beneficial acupuncture can be, and I highly recommend it for those suffering from any type of back and disc problems, stress, pain, allergies, headache/migraines, addiction, or disease, to name just a few.
March 29, 2013:
I’ve been learning and trying new things this month that I’m very excited to share with you.
It all started with my chiropractor and nutritionalist, Tracey McIntyre DC, NRT with ChiroHealth Wellness Center. When we first met to discuss my eating habits, I quickly learned that my diet consisted primarily of carbohydrates . . . I was encouraged to also eat foods that were rich in fat and protein. Additionally, I discovered during this time how horrible processed food was, and how important it is to eat vegetables, fruits, berries, nuts, meat, fish and poultry.
This month I have learned more about Dr. Terry Wahls and her story. What she has been through and what she has accomplished is really quite amazing. I encourage you to read her story. Dr. Wahls believes that “food, sun, movement and relationships are the real source of health.”
As such, not only have I changed my diet, but I have also started meditation and Pilates and I am feeling great!
To your health,
February 16, 2013:
Were you able to watch The Self Healing Coach’s webinar this past Wednesday night with Dr. Terry Wahls? If so, I know you will agree with me that Dr. Wahls’ story is really remarkable and it is so very encouraging.
If you weren’t able to see it, the following is a link to Dr. Wahls’ website where you will find her incredible story. Terry Wahls. I encourage you to check it out!
Wishing you the very best,
February 11, 2013:
Karen Gordon with The Self Healing Coach has put together a webinar with Dr. Terry Wahls scheduled for Wednesday, February 13th at 9 PM EST/8 PM CENTRAL/7 PM MOUNTAIN/6 PM PACIFIC.
Dr. Wahls has MS and is the founder of the Wahls Protocol, which is based on the principles of functional medicine and a Paleo diet that she developed and used to transform her own health and diet.
“For four years, secondary progressive multiple sclerosis confined Dr. Wahls to a tilt-recline wheelchair. But now, thanks to the Wahls Protocol, she walks easily without a cane and commutes to work by bicycle!” The Self Healing Coach.
The webinar event, The Healing Power of Food, is free, and I suspect the information provided will be priceless.
The following is a link to the webinar scheduled for Wednesday, February 13, 2013:
The Self Healing Coach:
IMPORTANT: Mark the date on your calendar, we will fill up!Wednesday, February 13th 9 PM EST/8 PM CENTRAL/7 PM MOUNTAIN/6 PM PACIFIC
Make sure to sign up to claim your spot at the webinar here:
If getting well is something you want in your life, I encourage you to take advantage of this amazing opportunity.
Here’s the link again:
To Your Health,
I’m looking forward to hearing what Dr. Wahls has to say this Wednesday night, and wanted to share this opportunity with you.
January 28, 2013:
Recently, a friend of mine recommended that I see her chiropractor to help with balance issues. I saw Tracey McIntyre DC, NRT with ChiroHealth Wellness Center for the first time earlier this month; and, I am officially addicted.
I had been to several chiropractors in the past, with the last visit being in 2005 before I was diagnosed with MS. It had been 8 years since I saw a chiropractor, and I was really looking forward to meeting Tracey. The initial visit went really well, and I knew immediately that Tracey would be able to help me. I have seen her more than ten times now, and I already feel so much better. What a difference!
Not only is Tracey a wonderful chiropractor, she is also a Designed Clinical Nutritionalist. Now that I am feeling so much better physically, I am ready to talk to her about a personal designed clinical nutrition program. I will let you know how that goes.
In addition to seeing Tracey, I have also decided to try Pilates. It is my understanding that Pilates is really great for strengthening one’s core, which I believe will assist in me walking again without my walking poles.
I am really psyched about my New Year’s resolution to try new things to make my journey easier, and I will keep you posted on my progress.
December 11, 2012:
Stress and the Holidays
I think we can all agree . . . stress can exacerbate MS symptoms. And, with the holidays and the New Year just weeks away, I think it’s safe to say that a lot of us are under a lot of stress in finding the perfect gift for that special someone, finding the best tree, thinking of what to wear to the next party, and doing everything that is necessary to make this time of year fun and memorable for all of our family and friends. As such, it is important to take time for yourself during all the craziness to keep your stress levels down so as not to have an MS attack.
In so doing, I found the following link to be very helpful in managing one’s stress:
I hope you find this helpful. And, I hope you have a beautiful Christmas!
September 6, 2012:
I saw Dr. Blum, my neurologist, last Wednesday for my 3-month checkup, and shared with him that I had been seen sick with a fever the month before. (Now, just FYI . . . I never get sick. In fact, this was the first time that I had been sick with a fever since being diagnosed with MS in 2005.) I told him how the MS symptoms were 10 times worse with the fever, and how awful I felt. He explained that it is very dangerous for a person with MS to run a fever; and, that it is very important to take Ibuprofen or Tylenol every 3 hours to keep the fever under control. I had no idea that a fever could exacerbate one’s MS symptoms, and thought it important to share this bit of information with you.
July 19, 2012:
I created a page for Your Journey with MS on Facebook, and discovered additional Facebook related MS links. (I am providing the name of the Facebook account, as well as some of the web addresses that I found.) The links that I found are:
The day to come is longer than the year that has passed.
The aim is to change attitudes out there that always portray MS in a negative way. Whenever I hear about MS in the media or on TV it’s usually in a negative way and I want to change that.
Basically, I’m someone who has MS (Multiple Sclerosis) and am frustrated at all the negativeness, so I’ve created a site focusing on the Positive! Enjoy!
This group is designed to be a support system for all those that are facing not only the challenges of life, but the obstacles that come along with the diagnosis of a chronic illness~~where you can talk to people who actually have been there and understand what you are talking about. Also to give each other suggestions to help better whatever it is you need help with. This is to share whatever it is you need to share, vent or anything else. Nothing is off limits here.
Attitude is the real Disability. Ability is what you’re capable of doing. Motivation determines what you do. Attitude determines how well you do it.
I have MS, but it doesn’t have me!
MSAA is a national nonprofit organization whose mission is to enrich the quality of life for everyone affected by multiple sclerosis (MS). Our wide array of programs brings ongoing support and direct services to people with MS and their families.
MSAA’s mission is to enrich the quality of life for everyone affected by multiple sclerosis.
Our wide array of programs and services bring ongoing support and direct services to people with MS and their families throughout the country. MSAA also serves to promote greater understanding of multiple sclerosis and the diverse needs and challenges of people with MS.
The Multiple Sclerosis Foundation provides a comprehensive approach to helping people with MS maintain their health and well-being. We offer programming and support to keep them self-sufficient and their homes safe, while our educational programs heighten public awareness and promote understanding about the disease.
Our resources assist people who have MS, their families and caregivers, regional support groups, and healthcare professionals. Access to our programs and services is available through our interactive web site or our national, toll-free helpline staffed by caring caseworkers and peer counselors. Our priority is to serve with empathy, resourcefulness and responsibility.
All MSF services, as well as information, literature and subscriptions to our publications are provided free of charge. The MSF neither sells memberships nor requires participation in fund-raising activities by individuals or support groups.
The MSF does not allow the promotion of commercial products or services by visitors to our page. Businesses wishing to inform the MS community about available products and services should contact the MSF directly for consideration.
I hope you find the above helpful and informative.
July 3, 2012:
Friends of ours shared the following link on Facebook. It’s a great website concerning MS, and I think you’ll enjoy it, too.
June 12, 2012:
Today I did a workout that I found on SparkPeople for the first time. It is a great resistance band workout and I believe it will help strengthen my core, which I know will help with my balance and other issues that I am experiencing. If you get a chance to try it, let me know what you think. I’d love to hear from you!
June 4, 2012: